For those of you who know us well, you know all about our son Noah. Noah was born with a rare genetic disorder called Galactosemia. For those that don't really know about or understand it you can visit http://www.galactosemia.org/ for more information. It's taken a lot of time to get used to and a lot of adaptations to our lifestyle to make accomodations for our son. Noah had a VERY rough start in the NICU, but with our careful watch he has thrived and to anyone who doesn't know him, looks like a typical healthy toddler.
We are looking forward to our next visit to the new Children's Hosiptal of Pittsburgh on Monday, June 22, 2009. The doctors are wonderful and we are hoping that his nutritionist will have an updated food list for us!
It's always great to connect with other parents of children with Galactsemia.. For along time my husband and I felt totally alone in our quest to educate ourselves on this rare nutritional disorder.. I look forward to following your blog.. :-)
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